Rare disease multidisciplinary care
Rare disease MDT care
At a glance
Multidisciplinary assessment and coordinated care for rare and complex neurological diseases.
Why here
- Peking Union Medical College Hospital is the national lead institution of the national rare disease network.
- The neurology department has eight clinical subspecialties, including neurophysiology/ALS, cerebrovascular disease, movement disorders, neuroinfections, dementia, epilepsy, demyelinating disease and muscle disease.
- It uses multidisciplinary care for rare and complex diseases.
- In 2021 the neurology department had nearly 120,000 outpatient visits and more than 3,000 discharges.
Evidence and data
No public data yet.
Suitable and not suitable
- Suitable
- Requires hospital assessment based on disease type, condition and general health.
- Not suitable
- Not for self-assessment; eligibility is determined by the hospital.
This is not a self-assessment tool; the hospital decides on eligibility after review.
Treatment and stay
No public data yet — we update this as hospitals publish information.
- Pre-treatment assessment
- Treatment / procedure
- Inpatient observation
- Follow-up
Cost range
No public data yet — we update this as hospitals publish information.
- Medication and treatment
- Procedure
- Hospital stay and monitoring
- Tests and laboratory work
- Follow-up visits
- Management of complications
Published item prices are not a total treatment price. A case-specific estimate must come from the hospital.
International patients
International patient acceptance is to be confirmed with the hospital.
Sources and updates
1 update record(s)
- · Added
Frequently asked questions
- What does this specialty involve?
- It describes a service the hospital publicly lists; the exact protocol depends on the hospital's assessment and the individual case.
- Who decides whether it is suitable for me?
- The hospital's clinical team decides after reviewing records and tests. This page is not a self-assessment or a guarantee of eligibility.
- How do I start the process?
- Prepare your diagnosis, records and test results, then use the planning tool or ask a question; the hospital confirms whether a remote review is possible.
- What should I prepare before travelling?
- Usual preparation includes medical records, medication list, insurance details and visa documents. The hospital may request additional tests or an invitation letter.
- How are stay and cost estimated?
- Stay and total cost depend on the treatment plan and complications. Public price items are not a total package price; ask the hospital for a case-specific estimate.
- Can international patients be accepted?
- Acceptance is not confirmed on this page. Contact the hospital directly to confirm international-patient services, language support and payment arrangements.
- What are the limits of this information?
- It is compiled from public hospital sources and may lag behind current practice. Sources and review dates are listed; current status must be confirmed with the hospital.
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